Our Voice Hub

No one understands cancer like you. That’s why your voice matters. Our Voice Hub is a way that you can use your experience and knowledge to help make things better for other children, young people and families going through cancer. Families just like yours. 

From online surveys to creative projects, research studies to NHS panels, there are all sorts of ways to get involved. We’ll share the opportunities on our hub via email and you can choose any that feel right for you. Get involved as much or as little as you like, there is no pressure and no ongoing commitment, you can dip in whenever you like.

>Join our Voice Hub

Meet some of our Voice Hub members

Voice hub member Pippa holding banner saying share your voice

Pippa

Pippa who was diagnosed with bowel cancer aged 24 found being a part of our voice hub helped her in her transition to find her new normal after cancer treatment. 

“Cancer remains part of my experience, shaping how I approach my health and daily life. Integrating that experience into my identity has been an ongoing process. I am still the same person, but also not the same at all, and learning how to bring those parts of my life together takes time. 

Cancer gave me permission to live differently. It led me to prioritise my health, set clearer boundaries and be more deliberate about how I spend my time and energy.  

The Voice Hub has played a significant role in this transition. It has connected me with others diagnosed at a young age, reducing isolation and creating a shared understanding that is hard to find elsewhere. It has also created opportunities to contribute to wider conversations, including cancer-focused conferences and advocacy work. Through this, I have been able to turn my experience into something that can support others and contribute to positive change.” 

Voice Hub member Lewis

 Lewis

Lewis, through our voice hub, was able to attend the All-Party Parliamentary Groups (APPGs) meet, where they discussed Children and Young People in the National Cancer Plan. He was able to share his views with MPs, relating his own lived experience and why it is so important that the unique needs of children and young people are catered for in the National Cancer Plan. As a result of attending the meeting, Lewis was mentioned in parliament in March 2026 at the second reading of the Rare Cancers Bill by APPG member Baroness Finlay. 

“Having the opportunity to attend the APPG meeting was a pleasure and a privilege. It was wonderful to share discussions with MPs that had a genuine passion and interest for Children and Young People and their families. It’s an experience I will never forget, but one I’d thoroughly recommend.” 

 

Voice Hub member Isabella

Isabella

Isabella, who joined our Voice Hub after experiencing Actue Lymphoblastic Leukaemia at 19, attended Cancer Research UK’s Data-Driven Cancer Research Conference in March 2026. An opportunity they accessed through our voice team, they were able to co-chair a panel session on quantum technologies.

“Co-chairing the panel discussion on quantum technologies was fascinating… Between the talks, I asked each presenter a question to really highlight the impact of the work on the patient, and I think this helped researchers see that their work translates directly into the lives of patients… I am extremely grateful to Young Lives vs Cancer and Cancer Research UK for this opportunity to share my voice,”

Your voice and ideas shape services, research and policy for children and young people with cancer, right now and in the future.  You’ve lived it, you know exactly what it’s like. That’s why your perspective is so invaluable. 

Whether you’re going through treatment, finished treatment, or supporting someone as a parent, sibling or partner your experience is important, and it deserves to be heard. Join the Voice Hub and see the difference your voice can make.

Frequently Asked Questions

Join our Voice Hub today and have your say.