Support for LGBTQIA+ young people with cancer

In this blog, Social Care Practitioner Laura Rohdich discusses the kinds of discrimination LGBTQIA+ young people can face in cancer care and shares useful resources for support.

How can being LGBTQIA+ affect your cancer experience?

No young person facing cancer should experience discrimination because of who they are. Unfortunately, research has shown that this does sometimes happen to young people in the LGBTQIA+ community.

I use the acronym LGBTQIA+ (lesbian, gay, bisexual, transgender, queer/questioning, intersex, asexual and other identities) to describe lots of people in this article, and it’s really important to acknowledge that this covers a varied group of people who have a diverse range of challenges and differing needs.

From screening to treatment, communication, post-treatment, and even in end of life care, all LGBTQIA+ people and those who love them can face discrimination from cancer services.  

Don’t just take my word for it – here are some stats from people who’ve done the research (references at the end of this article): 

  • LGBTQIA+ people are less likely to attend cancer healthcare screenings (like cervical or prostate screenings) or seek health advice due to fear of prejudice. This could mean that they are diagnosed later, and have more advanced cancer when they’re diagnosed.
  • LGBTQIA+ people are less likely than heterosexual/cisgender people with cancer to report that they were told sensitively that they had cancer.
  • 44% of adolescent and young adult LGBTQIA+ cancer patients said they had experienced discrimination of some form during their treatment.
  • LGBTQIA+ patients are less likely than straight/cisgender people to say they believe that hospital staff always did everything they could to control their pain.
  • LGBTQIA+ patients and carers report persistent insensitive behaviour regarding their home and family life and status of partners
  • LBGTQIA+ patients were less likely to have advanced care planning or legal issues addressed towards the end of their lives, and their partners were less likely to receive bereavement support.
  • While healthcare staff generally feel comfortable treating LGBTQIA+ patients, their knowledge is low particularly when it comes to trans and gender-diverse patients. 

Most of these statistics are about older cancer patients. When specifically looking at young people who are LGBTQIA+ and their experiences of cancer care, there is so little research it is disappointing and worrying in equal measure.  

Part of the reason for this is because historically when scientists and researchers have looked at huge healthcare datasets, information about gender identity and sexual orientation has not been included. Thankfully the UK is making steps to address this data gap.

What should I do if I experience discrimination?

If you feel you’re being discriminated against because of your sexuality or gender identity, a good first step is to talk to someone from your healthcare team (if you feel comfortable doing so). They may not have realised that there’s a problem and will appreciate your feedback.

If this doesn’t help, you could talk to the service at your hospital that helps patients resolve concerns:

  • Patient Advice and Liaison Service (PALS) in England and Wales
  • Patient Advice and Support Service (PASS) in Scotland
  • Your local health and social care trust’s complaints manager in Northern Ireland.

You could also contact a support service for advice. Our support team are happy to help, or you could contact one of the organisations in the ‘support resources’ section below.

Support resources

If you’re a young LGBTQIA+ person with cancer (or you love somebody who is), there is a growing body of useful and inclusive resources and support networks out there. Click the arrows below to find out more.  

Our promise to LGBTQIA+ young people going through cancer

We recognise our responsibility in supporting LGBTQIA+ communities. We exist so that no child or young person has to face cancer alone, which means we exist for LGBTQIA+ young people and their families. All children and young people with cancer should have the same opportunities and access to care. 

Find out more about our Pride Promise


Bristowe, K., Marshall, S., and Harding, R. (2016). The bereavement experiences of lesbian, gay, bisexual and/or trans* people who have lost a partner: A systematic review, thematic synthesis and modelling of the literature. Palliative Medicine, 30(8), 730–744.   

Burki, T K (2021) The challenges of cancer care for the LGBTQ+ community. The Lancet, 22, 8.  

Day, Aasma. Young LGBTQI+ people ‘significantly’ more distressed when seeking cancer treatment due to discrimination fears. i News. 22 February 2022:  

Macmillan Cancer Support. LGBT People with Cancer: The Emerging Picture. September 2014:    

Meagher, Sophie. Addressing inequalities in LGBT cancer screening coverage. PHE Screening Blog. 15 March 2019:  

Ussher, Jane et al. (2021). Attitudes, Knowledge and Practice Behaviours of Oncology Health Care Professionals towards Lesbian, Gay, Bisexual, Transgender, Queer and Intersex (LGBTQI) Patients and their Carers: A Mixed-Methods Study. Patient Education and Counseling.   

Wakefield, Donna. Cancer care disparities in the LGBT community. Current Opinion in Supportive and Palliative Care. September 2021, volume 15, issue 3, 174-179.